For the most part, MS hasn’t really been on my mind. I see this as a global problem that I, nor anyone else can escape from. The enormity of it has been quite consuming so far. But yes, there are some nights I wake up panicking because on an individual level I am immune compromised,Continue reading “The Coronavirus Collection: Things That Have Been Helping Me Through All This”
Tag Archives: Living with MS
The Reality of Being Immune Compromised in a Viral World
This post is about Coronavirus. (Sorry, not sorry.) But not entirely, so stick with me. At this point I am kind of sick of hearing about it. But mostly I am so very sick of explaining to people that just because they have a 98% chance of surviving Coronavirus doesn’t mean that I do. OrContinue reading “The Reality of Being Immune Compromised in a Viral World”
The Difficulty of Putting Myself First
Tied into last week’s post about managing my stress, this week’s extension of that is how hard, I am realizing, it is to put myself first. This journey into what makes “me,” “me” and all of the associated feelings and insights have been really exciting. It may be cold and snowy outside, but lately IContinue reading “The Difficulty of Putting Myself First”
The Importance of Stress Management and Identifying Your Triggers
If you have been following my blog, you may remember that I had a flare up in late December that put me on a three day course of Solumedrol steroids to reduce inflammation and calm the searing nerve pain in my left leg. These drugs work by overriding my adrenal gland’s functions to produce certainContinue reading “The Importance of Stress Management and Identifying Your Triggers”
The First Dose of Ocrevus
I feel like there was so much personal build up to the first dose. I was nervous, scared, excited. I went to the infusion center and 5 hours later came out with 300mg of Ocrevus in my system. So how did it go?! How did I feel? Well. I woke up the next morning. IContinue reading “The First Dose of Ocrevus”
The Food I Eat
When people find out that I have MS, they often ask first about my diet in more detail – what I eat and how it makes me feel. We have some pretty interesting relationships and attachments to food that go way beyond it’s physical necessity. But, I think people know deep down that what theyContinue reading “The Food I Eat”
The Unknown and the Power of Now
I have mentioned it before, and I will probably talk about it again. One of the hardest parts of this disease is the unknown. There is of course the uncertainty of my physical future. Uncertainty of how I can handle that mentally. Something as small as a tingling in my hands can be a reminderContinue reading “The Unknown and the Power of Now”
The Intro
Multiple Sclerosis. Shortened to MS. What does that mean? Oh, so many things. A couple of really scary words to come out of your doctor’s mouth, first of all. At first hearing those words I was in shock. My mind immediately went to the only thing I knew about MS – the worst case scenarioContinue reading “The Intro”
