My friends often ask how I am doing. My family likes to say, “how is the MS?” This post is to let you know that I am doing well. My body has sent me some not so subtle hints to slow down in the past few months, and I am finding many ways to enjoyContinue reading “The April Update After a Virtual Visit with my Neurologist”
Category Archives: MS Medication
The Fluidity of Water
I have absolutely no concept of time anymore! You with me on that? This global pandemic has been at our doorsteps for some time now. It feels like it’s been a year, but it’s only been like a week. Wait, I looked at the calendar and the first case in Colorado was about a monthContinue reading “The Fluidity of Water”
The Reality of Being Immune Compromised in a Viral World
This post is about Coronavirus. (Sorry, not sorry.) But not entirely, so stick with me. At this point I am kind of sick of hearing about it. But mostly I am so very sick of explaining to people that just because they have a 98% chance of surviving Coronavirus doesn’t mean that I do. OrContinue reading “The Reality of Being Immune Compromised in a Viral World”
The Importance of Stress Management and Identifying Your Triggers
If you have been following my blog, you may remember that I had a flare up in late December that put me on a three day course of Solumedrol steroids to reduce inflammation and calm the searing nerve pain in my left leg. These drugs work by overriding my adrenal gland’s functions to produce certainContinue reading “The Importance of Stress Management and Identifying Your Triggers”
The First Dose of Ocrevus
I feel like there was so much personal build up to the first dose. I was nervous, scared, excited. I went to the infusion center and 5 hours later came out with 300mg of Ocrevus in my system. So how did it go?! How did I feel? Well. I woke up the next morning. IContinue reading “The First Dose of Ocrevus”
The Food I Eat
When people find out that I have MS, they often ask first about my diet in more detail – what I eat and how it makes me feel. We have some pretty interesting relationships and attachments to food that go way beyond it’s physical necessity. But, I think people know deep down that what theyContinue reading “The Food I Eat”
The Unknown and the Power of Now
I have mentioned it before, and I will probably talk about it again. One of the hardest parts of this disease is the unknown. There is of course the uncertainty of my physical future. Uncertainty of how I can handle that mentally. Something as small as a tingling in my hands can be a reminderContinue reading “The Unknown and the Power of Now”
Living with MS 